Taming cancer. Affected bodies, mirrored emotions and challenges for patients and their loved ones.
Résumé
One French person in 10 helps a loved one with cancer, this help being related to treatment compliance, accompaniment to medical appointments and chemotherapy sessions as well as to the daily life of the sick person. This chapter shows why relatives are brought to play are presentative role of (para)medical care. It focuses on a collective survey CORSAC carried out by observations and in-depth interviews either in the presence of relatives, or during which the question of relatives/caregivers was expressly addressed. In the same way that there are major differences between caregivers who have or have not encountered cancer, there are also major differences between patients with no experience of cancer, including among their relatives, and those who had already undergone serious episodes of health disruption and/or had accumulated a certain amount of expertise about their disease during their treatment.
Si le statut d’aidant est de plus en plus reconnu dans les textes en France, les interventionsdes proches tout au long de la trajectoire des patients restent partiellementconnues et/ou mal comprises de professionnels de santé. L’analyse du matériel de l’étudeCORSAC (Coordination des soins ambulatoires durant la phase thérapeutique aiguëdu cancer), comprenant le rôle des proches, révèle en creux des implicites et des lacunesdans la prise en charge du cancer. Les diverses mises à l’épreuve individuelles ne sedéclinent pas à l’identique selon les savoirs d’expériences et les collectifs sociaux. Lespatients les moins dotés peuvent davantage s’appuyer sur leurs proches pour faire faceau quotidien et font preuve de replis stratégiques qui s’apparentent à un véritableempowerment.